Loos talk

Aug. 25th, 2005 10:25 am
j4: (southpark)
[personal profile] j4
Cross-posted from [livejournal.com profile] theladiesloos. I don't know how to do a proper x-post on LJ, so I'll just say that if you've read it there, you don't need to read it here.

I'm SO FED UP. Since the beginning of May I've had stomach cramps and pain/discomfort, like having trapped wind all the time. It comes and goes, it's usually grumbling away in the background, sometimes it's just a vague feeling of not-quite-right, other times (like right now) it's bad enough to make me just want to curl up in a ball and whimper. Even when it's not too bad it makes me feel bloated and miserable and utterly unsexy (it's really hard to feel attractive when you're constantly farting like an old dog).

I've been to the doctor a couple of times. The answer, basically, is "we've no idea what's wrong with you". He's done various tests and they've all come back normal. I've got an appointment booked for next Thursday, and this morning I was tempted to try to ring up and get a sooner appointment, but I decided there was no point -- the condition isn't going to go away before then, but it's unlikely to worsen any more than this before then, and besides, they're not going to be able to get me an appointment outside work hours, and I can't call in sick with trapped wind, for god's sake. It never seems like it's quite bad enough at any one time to justify claiming that I'm too ill to go to work. It just goes on and on and on, and it wears me out.

In the meantime, nothing seems to make any difference. It doesn't seem to matter what I eat, or when I eat, or if I eat; indigestion remedies do nothing, the stuff the doctor prescribed the last two times did nothing; it doesn't seem to make any difference whether I stand or sit or lie down. There's nothing I can do, and I hate being helpless like this, I just want to know what it is and whether it's finite and whether there's anything I can do to cure it or even alleviate it. If somebody said "Right, you're allergic to everything except rice and water," then even that would be better; sure, I'd never be able to enjoy eating again, but at least I'd know that I could do something.

In addition to the stomach pains I'm getting worse and worse moodswings and attacks of depression. It's like something just bubbling up inside, there doesn't seem to be any way to stop it, I just start feeling nervy and angry and queasy and then something somebody says will trigger me and I'll just be spiralling down into awfulness. I don't even know how to explain it when I'm not actually in that state, it's just like everything burning up inside me, like a red mist, and I end up crying and shouting and being angry and violent and miserable. It's more like a fit or something than a 'moodswing'.

The moodswings seem to be coming in cycles of about 2 weeks, in line with the cycle of my Pill. I've been on the Pill for 10+ years (on this particular one for most of that time), and I've suffered from depression for all of that time (and then some), but it's only quite recently that my life's been settled enough in other ways for me to be able to observe the pattern like that. And the depression started before I went on the Pill, so it'd never really occurred to me that they might be connected. As for the stomach problems in relation to the Pill -- I've always had wind and dodgy bowels when I have my period, but judging from recent conversations on here that seems to be quite normal; but this recent stomach thing is more constant and seemed to come on very suddenly back in May -- so it seems unlikely that it's a result of something I've been taking for this long. I'd be happy to come off the Pill, less happy to try changing to different Pills as I don't want to spend the next howevermany months changing from Pill to Pill and never being sure whether it's the change or the type of Pill or other factors altogether that are making a difference (if any difference is made).

I want to tell the doctor all this, but every time I go to the doc with any physical symptom he asks if I'm depressed, and I know that as soon as I say the magic word "depression" all the physical symptoms will immediately be written off as the hypochondriac imaginings of a neurotic woman, and if I refuse to take YET MORE fucking antidepressants it'll be considered evidence that I "just don't want to get better". (Despite the fact that EVERY TIME I've taken ADs they've not helped at all and given me bad side-effects.)

There just seem to be too many factors altogether, it's impossible to do any sort of controlled experiment, and it's understandable that the doctor just looks at this mess and thinks "Hmm, obviously just a hypochondriac, just wants attention." But I'm not making it up, and I'd be quite happy to never have any attention again from the medical profession as a whole, and I do want to fix it, but I don't know how to untangle it all. I hate it. I want to outsource my entire digestive/reproductive system to Elbonia while they sort out what's wrong with it.

Date: 2005-08-25 09:52 am (UTC)
From: [identity profile] nomme.livejournal.com
Your symtoms sound similar to what my girl friend went through. She was back and forth to the doctors like a yo-yo. It took ages to discover what was wrong with her. It turned out to be an ovarian cyst.
I hope this isn't what you have and I dont wish to worry you unnecessarily, but if you can I would suggest you attempt to get a referal for an ultrasound scan.

Date: 2005-08-25 10:05 am (UTC)
aldabra: (Default)
From: [personal profile] aldabra
Mmm. I had ovarian cysts after years on the pill. Upside is that it seems easy enough to deal with once they diagnose it.

Janet, you're SURE you're not pregnant?

Date: 2005-08-25 10:09 am (UTC)
From: [identity profile] j4.livejournal.com
*sigh* I've been on the Pill for EVER. I haven't missed a Pill for aeons. I haven't missed a period (though yes I know they're not proper periods, and I've been told you can have periods all the way through pregnancy). I've been having all these symptoms for 4 months now, and my stomach has got no bigger -- if anything, I've lost weight. This really doesn't sound like pregnancy to me. I don't want to have to spend a tenner a month on a test just to convince everybody else I'm not pregnant every time the symptoms have gone on for another month.

Date: 2005-08-25 10:31 am (UTC)
aldabra: (Default)
From: [personal profile] aldabra
OK, just checking. (Though I don't think I gained much weight in the early months; it all seemed to go on very suddenly towards the end.) The wind didn't sound diagnostic, but the moodiness did 8-)

I felt much better when I came off the pill; I think EVER is long enough to be on it. I was delighted to be on it when I was twenty but I wouldn't want to start again now. But then, [analysis of comparable faff deleted].

Date: 2005-08-25 10:40 am (UTC)
From: [identity profile] bopeepsheep.livejournal.com
I don't suppose it helps but I'm in a similar position, pain all the time and in very similar ways. I have tested a couple of times but probably have more reason to do so because I have no cycle whatsoever (post-Depo/breastfeeding), no hormonal contraception, and wouldn't have a clue if I got pregnant other than obvious physical symptoms. I know you're fed up with hearing this as a hypothesis, and I sympathise, but I can see why it keeps coming up as a theme - I have wondered several times if I really am, but the tests keep saying no. And you'd think I would know what it felt like... (this is a poke at myself, not you)

Anyway. Have you tried exclusion diets yet? [livejournal.com profile] karen2205 has written more or less what I would on that front. So far giving up/cutting down on wheat and dairy has made no difference to me, but they made a huge difference to my mum. Brassicas and fizzy drinks seem to make things worse for me, as does cooked cheese (but not cheese from the fridge). Gallbladder pain can feel like you're describing, too, which is more a matter of cutting out fat as much as possible.

Date: 2005-08-25 10:54 am (UTC)
From: [identity profile] j4.livejournal.com
I haven't tried exclusion diets -- partly because I've not managed to find two months that I can put aside when I don't mind not being able to go out at all; and partly because I don't want to make myself sensitive to stuff (thereby adding to the problem) by cutting it out of my diet.

Gallbladder is one thing I'd thought of -- my dad and his mum both had gallbladder problems (my dad had to have his taken out when he was in his late 30s) and with my dad he thought for ages it was an allergy to eggs, though it seemed to be a sort of inconsistent allergy. Problem is the doctor won't just test for that on request, and he doesn't seem to think it's much of a possibility. :-( I haven't tried cutting out all fat, but high-fat certainly meals don't seem to make it noticeably worse...

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